The cost

 What is this costing me?

Me.


My job. My friends. My health. My goals. My hobbies.

The version of me that existed before all of this.


I can't be tired.

I can't stop.

I just take everything thats thrown at me.

And everything thats thrown at my child.

Constantly alert. Constantly expecting bad news. 

Constantly facing new walls and barriers, constantly fighting, climbing and breaking through them.

I'll do it but what is actually left of me?


My own health and identity have been disappearing.


And now I'm spending my evening holding back tears about pasta.


It's not about pasta.

It's the final straw and confirms everything I already knew. No one is interested in making things easier unless I jump through a thousand hoops first. Prove I'm not lying. Prove I understand my child. Prove he cannot eat potato. Prove everything. It is unnecessarily difficult. Nothing is accessible without a fight.

Barrier. Barrier. Barrier.


Its just hard. And I want to have a moan about it. It honestly feels like it never ends. Relentless.


I'm done.

But also...


How can I help?

What can I do?

What forms do I need? 


"A good bureaucracy is the best tool of oppression ever invented" ~ Frank Herbert


Need a pick me up.


Come on England? 🏴󠁧󠁢󠁥󠁮󠁧󠁿

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